Tag Archives: 2018

What I Learned in 2018

There have been all these memes and review about the rottenness of 2018: it’s very clear many of us are ready to say good riddance. It was not a banner year for our family either–Lucia had one surgery and two unplanned hospitalizations and both of those came during busy semesters. But, she and we also had one of the best summers of our lives! She was healthy and happy and we went on two vacations with friends and family.

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One of my favorite photos of our girl. My photo.

When I look over this year, the lectures I got to give, the conference I got to plan, the articles I published and submitted, the major grants I’ve won, and the mentoring and ministry and preaching I’ve done, it means that much more that it didn’t happen in seasons where things were easy or seamless, and yet there is so much to treasure and cherish. Perhaps especially when things aren’t perfect, it really helps to look back. We rarely learn from triumphs and successes. We tend to just keep forging ahead. But disappointments, mistakes, and challenges are the sites where growth can take seed if we’re willing to own up to them.

In that spirit, I’m honored to share some of what I’ve learned with you in this year, and I invite you to do the same. What end of the year rituals do you have? What hopes do you have for 2019?

  1. I am thankful for the ordinary–it is a gift and it is enough.
  2. There is freedom in telling our stories.
  3. The myth of the modern, American family is that each of us stands alone.
  4. Words are not necessary to communicate.
  5. People with disabilities have gifts for ministry.
  6. I am a mother, too.
  7. As for me and my house, we will wait with joy.

*If you want to see my posts from previous years, check out how I found my voice in 2017 and What I Learned in 2016.

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What I learned in 2017

Looking back, 2017 on the blog will be remembered as the year I broke my silence, the year my writing became resistance.  Only a year prior, I’d begun sharing Lucia’s story, but this year, that personal side of politics became something that as a mother, a pastor, and a professor who studies disability, I just couldn’t remain quiet about.

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Speaking at an event at Princeton University.  Photo by Evan Schneider.

But as much as there is to share about what I’ve learned this year, there’s thanks in order to you, dear readers, for hanging in with me throughout all the feelings and frustrations and for your own listening ears, your caring, and your advocacy.  Whether you’re a new reader, or you’ve been around for awhile, thank you for sharing our family’s struggle.  I certainly hope you’ll let me know which posts continue to resonate with you, what you like best and what you like least about the blog, what you’ve learned in 2017 and what you’re looking forward to in 2018.

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Love these two.  My photo.

Here is a look back in hopes that these lessons learned from the year prior will carry us forward in making this world more just, more healthy, more good, and more compassionate:

1.  Resistance is not just about marching and advocating, but writing, educating, and bridging the divides between us.

2.  It’s easy to underestimate people with disabilities, even for parents; thank God the joy God has given Lucia defies all odds! (And she is still loving school!)

3.  Unfortunately, people with disabilities cannot take healthcare for granted, but thank goodness for your advocacy this year!

4.  I’ve loved using the Enneagram as a tool to understand myself and those around me better.

5.  I’m so grateful for the differences God has made in all of us.

6.  “My Baby Wasn’t Born Healthy and Her Life Still Matters.”

7.  We must to learn to see differently.

8.  Christian calls for unity must not undermine difference.

9.  I fight because we are a Medicaid family and healthcare is about human dignity.

10.  There’s nothing like a little silence.

11.  And I will not give up in 2018!

(And a look back at What I Learned in 2016 if you’re so inclined…)