A couple days ago I talked with a friend who has a daughter who faces similar special needs as Lucia. It was refreshing to speak with someone who has such a kindred attitude toward celebrating his daughter’s life, despite the challenges and the hardships.
However, as we drove home from the hospital after a successful surgery with Lucia yesterday, I reflected that in so many ways this attitude of understanding our children’s lives as cause for celebration rather than burden is bolstered by the support systems we share. My husband and I are so thankful to live in a state that invests in Lucia’s care, to have insurance, that despite its shortcomings, generally covers all that she needs, and to have friends and family that love Lucia unconditionally, pray for her, and care for us!
It is difficult to imagine how we might view Lucia’s disability if with every medical intervention we had to also sweat the finances or insurance coverage or if we had to worry that someone caring for her didn’t have the proper resources or training. These are the very important supports that often go unstated in the words I write about Lucia, and this morning, I am thankful for them. I am also deeply prayerful that families who don’t have such support will find it in gracious lawmakers, caring social workers, more humane insurance policies, and more state programing for kids and families with special needs.
The pending election in this country may seem positively incongruous with this month in which we aim to practice gratitude by naming our blessings when so many, like the ones above, go unacknowledged. But this morning, I began to wonder what it might look like to practice a spirit of gratitude despite the strife and division in this country and the world.
How would our attitudes toward one another shift if we were to focus our attention on all that we in America have to be grateful for, what we are grateful for in the candidates we support, or what we are grateful for when it comes to the provisions of our country and state (rather than only so very critical of)? Thanksgiving invites us to pause and offer God the praise that God is due, and as we can see, this in and of itself, in an election season can be very powerful and countercultural! Could such thanksgiving invite us to more civility and less hate? Could it remind us of our common human needs, desires, and goodness? Could it point us back to God when our human ways are frail and flawed?
I realize, perhaps more personally than many this election season, how dire and in jeopardy such supports for people with disabilities are, and I do not discount these challenges, but I wonder if gratitude is still an appropriate way to reflect on the hardships in the midst of the blessings. After all, God has taught me so much about how to experience blessings despite the challenges as we’ve gotten know Lucia!
So this morning, I am thankful for…
The amazing nursing care provided through Medicaid in the state of New Jersey, for my daughter, Lucia, and the opportunity for her to attend a school come February that will meet her special needs.
A presidential candidate who has made disability rights a platform in her campaign.
Students at a historically black college who protested a KKK speaker in their auditorium and people protesting a pipeline that will disrupt Native American lands. Thankful for those who lift their voices, use their bodies, and engage in brave, peaceful protest for those in need in this country.
A democratic country with peaceful elections, robust debate, and freedom of speech.
All those who love Lucia so well, celebrating rather than mourning or pitying her life.
What are you thankful for this morning? What countercultural words do you have this election season? Feel free to link up with this post and write your own #thanksgivingforelectionseason.